Medical History

Brief History

I have a very bad scoliosis and a large thoracolumbar spinal tumour with extraspinal extension.

November 16, 1982 - pain in the legs, went to a doctor podiatrist. Diagnosed with flat feet.

February 24, 1987 - pain in back

October 20 - November 14, 1989 - Children's Hospital, Diagnosis: Implications natal trauma, scoliosis 1-2 degree, right-sided hemiparesis.

October 24 - November 12, 1990 - Children's Hospital. Diagnosed with right hemiparesis, natal spinal injury, scoliosis 1-2 degrees, cramps in his right leg, back pain.

January 24 - February 22, 1991 - Children's Hospital. Back pain, pain in the left leg - seizures.

June 7 - July 3, 1991 - Children's Hospital. Diagnosis: Implications natal spinal injury, asthenic syndrome. Leg cramps, back pain.

July 25 - July 28, 1991 - Sanatorium "Spark"

October 13 - November 5, 1992 - Chronic gastro, chronic colitis.

August 1, 1993 - health resort.

1994 - 1995:. - 3 degrees of scoliosis.

January 1, 1995 - back pain and neck (radio dinamic, ultrasound with analginum).

March 10, 1995 - strong pain in the cervical spine in the thoracic and lumbar - physiotherapy with sinusoidal currents, ten sessions, indomethacin tablets and ointment to rub indometacin overnight.

October 4, 1995 - CT scan of spinal cord. Pathological process up to 42 mm long, 30 mm in diameter.

1996 - weakness in the legs, pain gone, lost sensitivity in the right, then the left leg.

1997 - legs do not move.

1998 - does not feel her legs, bowel does not work ...

December 25, 2006 - MRI scan of spinal cord. Intradural intramedullary formation at Th3-S2. Expressed in the form of cystic fragments, 43 mm in diameter...

April 12, 2007 - MRI scan of spinal cord with contrast. At level of Th5-L2 formation is determined multisite cystic component. Cystic part of volume extends to the level of Th2, hydromyelitic cavity to the level C2. Compared with the previous MRI scan the size have increased in the vertical dimension...

February 21, 2013 - MRI scan with contrast (tomovist 10.0 millilitres). An intramedullar intradural lump that has a polycystic structure is detected in the spinal canal located from the body of the Th5 vertebrae to the body of L2 vertebrae. The lump intensively accumulates a contrast medium in poorly differentiated components and by peripheral cystic sectors, the maximum lateral dimension is up to 42*38 millimeters. A hydromyelia cavity is traced to level C2. An unequal dilatation of the spinal canal, predominately in the middle-law-thoracic and lumbar spine sectors. Conclusion: intramedullar lump of the spinal canal on the level of the bodies of Th5-L2 vertebraes. S-shaped scoliosis.

July 10, 2013 London - Good quality MRI scan. Conclusion: Giant lumbar neurofibroma with syringomyelia and scoliosis.

On 9/1/2014 we got a quote from Charite International Health Care hospital in Germany, with cost estimation €51,470.
On 12/12/2016 the qoute from International Neuroscience Institute in Hannover, Germany. Prof Dr. med. Amir Samii. The price €50.000...

If you are a medical professional and believe that you may be able to help, please get in touch.


My operation has two parts. First of all remove the tumour; then straighten the spine.

The International Neuroscience Institute in Germany specialises in healthcare for diseases of the nervous system and has warned that costs "might not be under 50,000 Euros".

They will be able to give a more exact quote should I go to them for a thorough diagnosis. Even then, I face additional costs, such as travel to Germany, accommodation, and after any operation - rehabilitation costs.